Current Search:  Patient advocacy (x)

View All Items

  • CSV Spreadsheet
(1 - 2 of 2)
Patient advocacy: Shared vulnerability and personal integrity
Title
Patient advocacy: Shared vulnerability and personal integrity.
Creator
Lomas, Lynne E., Florida Atlantic University, Beckerman, Anita
Abstract/Description
Jean Watson's Theory of Human Caring and phenomenological methodology are the foundation of this descriptive study of four nurses' experiences of patient advocacy. The "meaning units" or constituents expressed by the participants were synthesized into an integrated whole to embody the experiences of patient advocacy and then objectively described by the researcher. Six components that embody the nurses' experiences are knowledge of self and others, caring commitment, expenditure of self,...
Show moreJean Watson's Theory of Human Caring and phenomenological methodology are the foundation of this descriptive study of four nurses' experiences of patient advocacy. The "meaning units" or constituents expressed by the participants were synthesized into an integrated whole to embody the experiences of patient advocacy and then objectively described by the researcher. Six components that embody the nurses' experiences are knowledge of self and others, caring commitment, expenditure of self, risks, emotional responses and psychological evolution and mutual affirmation. A better understanding of nurse's experiences of patient advocacy may provide more effective and satisfying nurse-client, nurse-as-person and nurse-as-professional relationships.
Show less
Date Issued
1996
PURL
http://purl.flvc.org/fcla/dt/15323
Subject Headings
Nurse and patient, Patient advocacy
Format
Document (PDF)
Zafè Neg se Mistè: a grounded theory study of end-of-life decision-making for Haitian American families in south Florida
Title
Zafè Neg se Mistè: a grounded theory study of end-of-life decision-making for Haitian American families in south Florida.
Creator
Ladd, Susan Charlotte, Smith, Marlaine, Florida Atlantic University, Christine E. Lynn College of Nursing
Abstract/Description
The purpose of this study was to investigate the process used by Haitians and Haitian Americans who must make healthcare decisions for a terminally ill family member. There is a large population of Haitians and Haitian Americans in South Florida and there has been no research regarding their decision-making process about end-of-life healthcare. The study design was descriptive, applying constructivist grounded theory methodology. Data were collected using semi-structured, face-to-face...
Show moreThe purpose of this study was to investigate the process used by Haitians and Haitian Americans who must make healthcare decisions for a terminally ill family member. There is a large population of Haitians and Haitian Americans in South Florida and there has been no research regarding their decision-making process about end-of-life healthcare. The study design was descriptive, applying constructivist grounded theory methodology. Data were collected using semi-structured, face-to-face qualitative interviews. Data analysis and collection occurred simultaneously. Participants (n=12) were purposefully recruited, with 11 from a single, faith-based community. The findings resulted in six concepts: (1) imminent or actual death, (2) disrupted unity, (3) managing disrupted unity, (4) consequences, (5) restoring unity, and (6) creating memories you can live with. These six concepts, elaborated by an additional 17 dimensions, were incorporated into a process model relating to the cultural value of communal unity to the end-of-life decision-making process. The implications of this study include a need to improve the congruence between the nursing care provided at this vulnerable time and the cultural values of this population. Successful access to this population through the structure of the faith-based community points the way to increasing access to appropriate end-of-life healthcare. Practice implications informed by caring science include the importance of nurses’ coming to know the family and listening to the unique care needs.
Show less
Date Issued
2015
PURL
http://purl.flvc.org/fau/fd/FA00004387, http://purl.flvc.org/fau/fd/FA00004387
Subject Headings
End of life care, Haitian Americans -- Medical care -- Florida, Informed consent (Medical law), Life and death, Power over, Medical care -- Cross cultural studies, Medical ethics, Nurse and patient, Nurses -- Attitudes, Patient advocacy, Patient refusal of care
Format
Document (PDF)