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Muddling through
Title
Muddling through: how young caregivers manage changing complexities.
Creator
Kain, Carole A., Christine E. Lynn College of Nursing
Abstract/Description
In the United States, an estimated 1.4 million children and adolescents, age 18 and under, provide daily unpaid physical, emotional and supportive care to a chronically ill or disabled family member (NAC & UHF). While the phenomenon of caregiving performed by adult children and spouses has been extensively explored by nursing, little is known about how Young Adolescent Caregivers manage being a caregiver while they attend school and mature socially as an adolescent. The purpose of this...
Show moreIn the United States, an estimated 1.4 million children and adolescents, age 18 and under, provide daily unpaid physical, emotional and supportive care to a chronically ill or disabled family member (NAC & UHF). While the phenomenon of caregiving performed by adult children and spouses has been extensively explored by nursing, little is known about how Young Adolescent Caregivers manage being a caregiver while they attend school and mature socially as an adolescent. The purpose of this Grounded Theory study was to identify and describe the basic social psychological problem shared by young adolescent caregivers girls, (N=9), aged 11-14, and the basic social processes used to manage the shared problem. Using the constant comparative method of data analysis, from audio taped and transcribed, semi-structured interviews were reviewed. The Basic Social Psychological Process (BSPP) identified was Managing Complexities. Muddling Through (BSP) was the process identified through constant comparison of the data to create categories. The phases of Muddling Through are: Becoming a Caregiver, Choosing Family, Creating Structure and Maintaining Balance. Young adolescents experienced becoming a caregiver through three paths: Embracing the Challenge, Sharing the Load and Being Assigned. Awareness of the consequences of being a Young Adolescent Caregiver and strategies used by Young Adolescent Caregivers to manage their changing complexities has implications for nursing interventions. Nurses in a variety of settings that treat persons with chronic illnesses can modify their practice to make significant supportive interventions with these largely invisible caregivers. Implications for policy change, nursing education and practice and future research are explored.
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Date Issued
2009
PURL
http://purl.flvc.org/FAU/227982
Subject Headings
Developmental psychology, Child caregivers, Children of parents with disabilities
Format
Document (PDF)
The Effects of a Brief Culturally Tailored Thai Mindfulness Intervention on Stress, Anxiety, and Mindfulness in Thai Parents of Children with Developmental Disabilities
Title
The Effects of a Brief Culturally Tailored Thai Mindfulness Intervention on Stress, Anxiety, and Mindfulness in Thai Parents of Children with Developmental Disabilities.
Creator
Petcharat, Manika, Liehr, Patricia, Florida Atlantic University, Christine E. Lynn College of Nursing
Abstract/Description
Parents of children with developmental disabilities (DDs) often suffer from psychological distress stemming from their children’s behavioral problems. One cause of distress is their challenge to accept their children’s illnesses mindfully. A culturally tailored and readily accessible mindfulness intervention may increase mindfulness and reduce distress. Also, there were insufficient studies regarding culturally relevant mindfulness trainings that have been conducted in Thailand. Therefore, a...
Show moreParents of children with developmental disabilities (DDs) often suffer from psychological distress stemming from their children’s behavioral problems. One cause of distress is their challenge to accept their children’s illnesses mindfully. A culturally tailored and readily accessible mindfulness intervention may increase mindfulness and reduce distress. Also, there were insufficient studies regarding culturally relevant mindfulness trainings that have been conducted in Thailand. Therefore, a Brief Culturally Tailored Thai Mindfulness intervention (BCTTMi) was developed, merging the work of Jon Kabat-Zinn with Buddhist philosophy. The purpose of this study was to examine the effects of the BCTTMi on stress, anxiety, and mindfulness in these parents. An experimental waitlist control crossover design with the 2-weekend BCTTMi was employed in 22 Thai parents and caregivers of children with DDs. They were all Thais and Buddhists; more than half had practiced meditation. They completed three Thai-version questionnaires: (a) the Parenting Stress Index-Short Form-4th edition; (b) the State Anxiety Inventory-Form-Y-1; and (c) the Mindfulness Assessment Scale, at three measurements (baseline, posttest, and two-week follow-up). Repeated measure ANOVA analyses were used to analyze data. The findings showed that anxiety significantly decreased from baseline to posttest, and mindfulness significantly increased with the BCTTMi. Nevertheless, stress did not significantly reduce over time, and change between intervention and control conditions did not differ for anxiety level. Moreover, there were no differences in any outcomes from posttest to two-week follow-up. In spite of Buddhist homogeneity of participants and sustained stress, mindfulness increased, and anxiety decreased following the BCTTMi. These findings indicate the feasibility of tailoring the mindfulness-based training to specific cultures and its usefulness as an efficient option for parents and caregivers of children with DDs. Further studies regarding the BCTTMi are warranted in broader populations and settings.
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Date Issued
2018
PURL
http://purl.flvc.org/fau/fd/FA00013130
Subject Headings
Mindfulness-based cognitive therapy, Parents of developmentally disabled children, Culturally Competent Care, Thais
Format
Document (PDF)