Current Search: Medical ethics (x)
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(1 - 8 of 8)
- Title
- Zafè Neg se Mistè: a grounded theory study of end-of-life decision-making for Haitian American families in south Florida.
- Creator
- Ladd, Susan Charlotte, Smith, Marlaine, Florida Atlantic University, Christine E. Lynn College of Nursing
- Abstract/Description
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The purpose of this study was to investigate the process used by Haitians and Haitian Americans who must make healthcare decisions for a terminally ill family member. There is a large population of Haitians and Haitian Americans in South Florida and there has been no research regarding their decision-making process about end-of-life healthcare. The study design was descriptive, applying constructivist grounded theory methodology. Data were collected using semi-structured, face-to-face...
Show moreThe purpose of this study was to investigate the process used by Haitians and Haitian Americans who must make healthcare decisions for a terminally ill family member. There is a large population of Haitians and Haitian Americans in South Florida and there has been no research regarding their decision-making process about end-of-life healthcare. The study design was descriptive, applying constructivist grounded theory methodology. Data were collected using semi-structured, face-to-face qualitative interviews. Data analysis and collection occurred simultaneously. Participants (n=12) were purposefully recruited, with 11 from a single, faith-based community. The findings resulted in six concepts: (1) imminent or actual death, (2) disrupted unity, (3) managing disrupted unity, (4) consequences, (5) restoring unity, and (6) creating memories you can live with. These six concepts, elaborated by an additional 17 dimensions, were incorporated into a process model relating to the cultural value of communal unity to the end-of-life decision-making process. The implications of this study include a need to improve the congruence between the nursing care provided at this vulnerable time and the cultural values of this population. Successful access to this population through the structure of the faith-based community points the way to increasing access to appropriate end-of-life healthcare. Practice implications informed by caring science include the importance of nurses’ coming to know the family and listening to the unique care needs.
Show less - Date Issued
- 2015
- PURL
- http://purl.flvc.org/fau/fd/FA00004387, http://purl.flvc.org/fau/fd/FA00004387
- Subject Headings
- End of life care, Haitian Americans -- Medical care -- Florida, Informed consent (Medical law), Life and death, Power over, Medical care -- Cross cultural studies, Medical ethics, Nurse and patient, Nurses -- Attitudes, Patient advocacy, Patient refusal of care
- Format
- Document (PDF)
- Title
- Modeling access control of medical information.
- Creator
- Sorgente, Tami W., Florida Atlantic University, Fernandez, Eduardo B., College of Engineering and Computer Science, Department of Computer and Electrical Engineering and Computer Science
- Abstract/Description
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Medical information is very private and sensitive. With the digitization of medical data, it is becoming accessible through distributed systems, including the Internet. Access to all this information and appropriate exchange of data makes the job of health providers more effective, however, the number of people that can potentially access this information increases by orders of magnitude. Private health information is not well protected. We present guidelines for security models for medical...
Show moreMedical information is very private and sensitive. With the digitization of medical data, it is becoming accessible through distributed systems, including the Internet. Access to all this information and appropriate exchange of data makes the job of health providers more effective, however, the number of people that can potentially access this information increases by orders of magnitude. Private health information is not well protected. We present guidelines for security models for medical information systems. First, we model the structure of the medical information in the form of object-oriented patterns. Second, we study models and patterns in use today and compare them to our patterns. Next we define requirements necessary for controlling access, and describe the common policies and restrictions of security models for medical applications. We present some of the medical record access control restrictions directly in a conceptual model of the medical information.
Show less - Date Issued
- 2004
- PURL
- http://purl.flvc.org/fcla/dt/13163
- Subject Headings
- Medical records--Access control, Privacy, Right of, Freedom of information, Medical records--Data processing, Medicine--Research--Moral and ethical aspects, Confidential communications, Medical ethics, Information storage and retrieval systems--Medical care, Medical informatics, Computer security, Medicine--Computer networks
- Format
- Document (PDF)
- Title
- Chief nursing officer sustainment in the continued practice of nursing leadership: a phenomenological inquiry.
- Creator
- Prestia, Angela S., Sherman, Rose O., Florida Atlantic University, Christine E. Lynn College of Nursing
- Abstract/Description
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The highly complex role of the Chief Nursing Officer (CNO) requires the refinement of a multitude of competencies and leadership skills in this unprecedented time of healthcare reform. As the senior most patient advocate in our medical centers the CNO is responsible for translating research into practice, policy development and implementation creating value based patient-centric strategies to transform health care. The ability to sustain and thrive in this role is essential in repositioning...
Show moreThe highly complex role of the Chief Nursing Officer (CNO) requires the refinement of a multitude of competencies and leadership skills in this unprecedented time of healthcare reform. As the senior most patient advocate in our medical centers the CNO is responsible for translating research into practice, policy development and implementation creating value based patient-centric strategies to transform health care. The ability to sustain and thrive in this role is essential in repositioning nursing as a knowledgeable discipline actively contributing to the redesign of healthcare. This exploratory descriptive phenomenological study was designed to explore and describe the elements that contribute to the sustainment of CNOs in their practice of nurse executive leadership. Ray’s (1989) Theory of Bureaucratic Caring, Authentic Leadership Theory (Wong & Cummings, 2009), and Resiliency Theory (Earvolino- Ramirez (2007) provided the theoretical lens through which this study was grounded. Semi-structured telephonic interviews were conducted with twenty CNOs all with two consecutive years experience in their current role. Six themes emerged after thorough content analysis which describes the lived experience of sustainment. Each theme was supported by several subthemes. Themes emerged as: Loving the Profession, Having a Broader Impact Reflecting on One’s Own Work, Learning to Manage Conflict, Maintaining Work/Life Balance Working with Supportive Leaders.
Show less - Date Issued
- 2014
- PURL
- http://purl.flvc.org/fau/fd/FA00004320
- Subject Headings
- Health services administration, Leadership, Nurse administrators, Nursing ethics -- Philosophy, Nursing services -- Administration, Outcome assessment (Medical care), Public health personnel
- Format
- Document (PDF)
- Title
- The relationship of self transcendance, social interest, and spirituality to well-being in HIV-AIDS adults.
- Creator
- Sperry, Jonathan J., College of Education, Department of Counselor Education
- Abstract/Description
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This study investigates the relationship of three protective factors : self transcendance, social interest, and spirituality to well-being among adults living with HIV or AIDS. It is the first study to explore the relationships of these protective factors to well-being. A convenience sample of 115 adults living with HIV or AIDS completed the Self-Transcendance Scale, the Social Interest Index- Short Form-Revised, the Spiritual Perspective Scale, and the Index of Well-Being. The participants...
Show moreThis study investigates the relationship of three protective factors : self transcendance, social interest, and spirituality to well-being among adults living with HIV or AIDS. It is the first study to explore the relationships of these protective factors to well-being. A convenience sample of 115 adults living with HIV or AIDS completed the Self-Transcendance Scale, the Social Interest Index- Short Form-Revised, the Spiritual Perspective Scale, and the Index of Well-Being. The participants were adults diagnosed with HIV or AIDS residing in a large southeastern U.S. city. Data were analyzed with correlational and multiple regression methods. Statistically significant positive moderate to strong relationships were found between well-being and self transcendance (r=.66, p<.001 ), social interest (r=.51, p<.001), and spirituality (r=.39, p<.001). A stepwise regression demonstrated that self transcendance held the highest variance on well-being among the three protective factors (43%). Additionally, self-transcendane and social interest accounted for 45% of the variance in well-being. In short, the hypothesized positive relationship among these protective factors with well-being was supported. This study provides theoretical and empirical support for linking self transcendance, social interest, and spirituality to well-being among adults living with HIV or AIDS. The clinical implications of these findings are also discussed.
Show less - Date Issued
- 2011
- PURL
- http://purl.flvc.org/FAU/3320105
- Subject Headings
- Medical ethics, Religious aspects, AIDS (Disease), Social aspects, AIDS (Disease), Patients, Care, Spirituality, Self-actualization (Psychology)
- Format
- Document (PDF)
- Title
- Rhetorical "Mosaicism" and Intractable Conflict: George W. Bush on Stem Cells.
- Creator
- Brooten, Gary, Marin, Noemi, Florida Atlantic University
- Abstract/Description
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President Bush's 2001 speech on stem cell research showed unusual intermixing of rhetorical bits from past arguments of proponents and opponents, suggesting that such mixing is a distinct rhetorical strategy. Analyses revealed two communities that had engaged each other over reproductive biology issues for decades, developing distinct vocabularies and argumentative patterns in that interaction. The speech mixed fragments ofthese usages. Traditional textual analyses and analyses ofthe mixing...
Show morePresident Bush's 2001 speech on stem cell research showed unusual intermixing of rhetorical bits from past arguments of proponents and opponents, suggesting that such mixing is a distinct rhetorical strategy. Analyses revealed two communities that had engaged each other over reproductive biology issues for decades, developing distinct vocabularies and argumentative patterns in that interaction. The speech mixed fragments ofthese usages. Traditional textual analyses and analyses ofthe mixing itself showed that the mixing seems to reinforce traditional approaches to divided audiences by opening up many possibilities for the communities to draw different meanings from what is said. Analyses of responses to the speech showed such split understandings, and followup analyses to 2007 suggest that the speech helped freeze the character of the debate in the form Bush gave it. Mixing is a viable rhetorical strategy to help manage intractable issues with deeply divided audiences.
Show less - Date Issued
- 2007
- PURL
- http://purl.flvc.org/fau/fd/FA00000902
- Subject Headings
- Bush, George W.--(George Walker),--1946---Political and social views., Medical genetics--Research--Moral and ethical aspects., Stem cells--Research--Moral and ethical aspects., Rhetorical criticism., Mosaicism., Developmental genetics--Moral and ethical aspects.
- Format
- Document (PDF)
- Title
- Suffering in the midst of technology: the lived experience of an abnormal prenatal ultrasound.
- Creator
- Gottlieb, Jeanne C., Christine E. Lynn College of Nursing
- Abstract/Description
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The purpose of this hermeneutic phenomenological study was to understand the essence of the lived experience of women after having an abnormal prenatal ultrasound. One hundred years ago, health disciplines had limited therapies for prenatal and neonatal disorders. During this period, the eugenics movement influenced leaders to involuntarily sterilize individuals who were sought to be "unfit" to prevent disorders in offspring. ... One of these contemporary reproductive genetic technologies is...
Show moreThe purpose of this hermeneutic phenomenological study was to understand the essence of the lived experience of women after having an abnormal prenatal ultrasound. One hundred years ago, health disciplines had limited therapies for prenatal and neonatal disorders. During this period, the eugenics movement influenced leaders to involuntarily sterilize individuals who were sought to be "unfit" to prevent disorders in offspring. ... One of these contemporary reproductive genetic technologies is the use of ultrasound and serum bio-medical markers for detection of congenital, chromosome, and genetic disorders. When ultrasounds reveal abnormal findings, the perceived perfect pregnancy vanishes and gives way to feelings of shock, disbelief, fear, guilt, loss, and threats to self and their unborn baby. Twelve women who had an abnormal ultrasound were interviewed within the context of their cultural values and beliefs. The method of van Manen's hermeneutic phenomenology illuminated the meaning for these women in their life worlds. ... They endured this experience through their own coping mechanisms, but often felt uncertainty and emotional turmoil until the birth. The women also sought comfort through their cultural values, beliefs, and traditions. In coping with the risks found on this abnormal ultrasound, women often selected silence or blocking perceived threats. With these coping methods, they were alone in their suffering. ... Health providers, in not recognizing these women's misunderstandings and emotional fears, abandoned them in their psychosocial and cultural needs. The significance reveals that nurses and health providers need to infuse human caring ways of being, knowing, and doing within advanced technological environments.
Show less - Date Issued
- 2013
- PURL
- http://purl.flvc.org/fcla/dt/3362381
- Subject Headings
- Medical genetics, Medical care, Decision-making, Health services accessibility, Abortion, Moral and ethical aspects, Pregnancy, Complications, Diagnostic ultrasonic imaging, Communication in medicine, Genetic counseling, Genetic disorders, Nursing, Standards
- Format
- Document (PDF)
- Title
- Iranian American Older Adults’ Attitudes and Proactive Actions Toward Planning Ahead for End-of-Life Care.
- Creator
- Rahemi, Zahra, Dunphy, Lynne M., Florida Atlantic University, Christine E. Lynn College of Nursing
- Abstract/Description
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Ethnically diverse older adults are the fastest growing population in the U.S. This population may experience transitional processes associated with immigration, acculturation, aging, and end of life (EOL). Advances in technology lead to increases in care options, which can cause uncertainty to make decisions for EOL. Unmade decisions about care prior to becoming unable to communicate are associated with burdens of last-minute decisions at EOL, unwanted intensive EOL treatments for people who...
Show moreEthnically diverse older adults are the fastest growing population in the U.S. This population may experience transitional processes associated with immigration, acculturation, aging, and end of life (EOL). Advances in technology lead to increases in care options, which can cause uncertainty to make decisions for EOL. Unmade decisions about care prior to becoming unable to communicate are associated with burdens of last-minute decisions at EOL, unwanted intensive EOL treatments for people who may die naturally of old age, financial and emotional costs, and decreased quality of life. In the U.S., a multicultural country with a variety of care options, advance directive (AD) completion and advance care planning (ACP) may improve culturally competent and person-centered care at EOL. However, the rate of AD completion and ACP is low among Americans, especially immigrant communities. These communities, including Iranian-American older adults, have been frequently understudied, and there is a gap in studies of EOL desires, attitudes, and actions/behaviors. This inquiry focused on planning ahead for EOL care across transitional processes that older immigrants may face. The aim was to enhance culturally competent care for older adults through distinguishing significant factors, which may influence planning for EOL care. Specific purposes were: To identify relationships between attitudes toward planning for EOL care and social supports, spirituality, healthcare system distrust, and acculturation; to identify a relationship between attitudes and proactive actions toward planning ahead in Iranian-American older adults. Conceptual frameworks for this descriptive, cross-sectional study included Culture Care Diversity and Universality and Transitions theories. Findings from 135 participants revealed that they were new immigrants to the U.S. (mean year of 23 in the U.S., 97% born in Iran) and highly educated and insured with high health statuses. About 55% preferred non-intensive treatments and/or homecare at EOL, and 52.6% had not communicated their EOL wishes. Attitudes toward planning ahead for EOL were positively associated with acculturation and healthcare system distrust, and negatively associated with spirituality. No significant association was found between attitudes and social support. Furthermore, favorable attitudes predicted higher proactive actions to communicate wishes. Implications for practice, policy, education, and recommendations for further studies were discussed.
Show less - Date Issued
- 2017
- PURL
- http://purl.flvc.org/fau/fd/FA00004939
- Subject Headings
- Older people--Long-term care., Advance directives (Medical care), Health planning--United States., Right to die., Life care planning., Terminal care--Moral and ethical aspects., Immigrants--Psychology.
- Format
- Document (PDF)
- Title
- Care at Work: A Feminist Analysis of the Long-Term Care Industry in the United States.
- Creator
- Tunick, Rachel, Beoku-Betts, Josephine, Lange, Bernadette, Florida Atlantic University, Dorothy F. Schmidt College of Arts and Letters, Center for Women, Gender and Sexuality Studies
- Abstract/Description
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This research provides a feminist perspective on the lowest paid sector of the United States long-term care industry, Certified Nursing Assistants. This research adds to current feminist scholarship on the modern professional caregiving industry by focusing on the perspective of the workers. As the population of older adults requiring care is expected to increase over the coming decades, the demand for paid caregivers will increase as well. Historically, care work was an expected duty done...
Show moreThis research provides a feminist perspective on the lowest paid sector of the United States long-term care industry, Certified Nursing Assistants. This research adds to current feminist scholarship on the modern professional caregiving industry by focusing on the perspective of the workers. As the population of older adults requiring care is expected to increase over the coming decades, the demand for paid caregivers will increase as well. Historically, care work was an expected duty done freely by the women of the family, but today much of the vital intimate caring labor is relegated to paid caregivers. I examine how alternative social, political and economic frameworks can transform United States society’s attitude towards the increasingly relevant issue of caring labor. I argue that incorporating a feminist perspective will be helpful in developing a sustainable model for caring labor that acknowledges the dignity of both patients and their caregivers.
Show less - Date Issued
- 2016
- PURL
- http://purl.flvc.org/fau/fd/FA00004801, http://purl.flvc.org/fau/fd/FA00004801
- Subject Headings
- Nurses' aides., Medical personnel-caregiver relationships., Nursing homes--Employees--Attitudes., Feminist theory., Caring--Moral and ethical aspects., Feminism--Political aspects., Long-term care facilities--Administration., Nursing home patients--Care., Older people--Nursing home care.
- Format
- Document (PDF)
