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Zafè Neg se Mistè: a grounded theory study of end-of-life decision-making for Haitian American families in south Florida
Title
Zafè Neg se Mistè: a grounded theory study of end-of-life decision-making for Haitian American families in south Florida.
Creator
Ladd, Susan Charlotte, Smith, Marlaine, Florida Atlantic University, Christine E. Lynn College of Nursing
Abstract/Description
The purpose of this study was to investigate the process used by Haitians and Haitian Americans who must make healthcare decisions for a terminally ill family member. There is a large population of Haitians and Haitian Americans in South Florida and there has been no research regarding their decision-making process about end-of-life healthcare. The study design was descriptive, applying constructivist grounded theory methodology. Data were collected using semi-structured, face-to-face...
Show moreThe purpose of this study was to investigate the process used by Haitians and Haitian Americans who must make healthcare decisions for a terminally ill family member. There is a large population of Haitians and Haitian Americans in South Florida and there has been no research regarding their decision-making process about end-of-life healthcare. The study design was descriptive, applying constructivist grounded theory methodology. Data were collected using semi-structured, face-to-face qualitative interviews. Data analysis and collection occurred simultaneously. Participants (n=12) were purposefully recruited, with 11 from a single, faith-based community. The findings resulted in six concepts: (1) imminent or actual death, (2) disrupted unity, (3) managing disrupted unity, (4) consequences, (5) restoring unity, and (6) creating memories you can live with. These six concepts, elaborated by an additional 17 dimensions, were incorporated into a process model relating to the cultural value of communal unity to the end-of-life decision-making process. The implications of this study include a need to improve the congruence between the nursing care provided at this vulnerable time and the cultural values of this population. Successful access to this population through the structure of the faith-based community points the way to increasing access to appropriate end-of-life healthcare. Practice implications informed by caring science include the importance of nurses’ coming to know the family and listening to the unique care needs.
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Date Issued
2015
PURL
http://purl.flvc.org/fau/fd/FA00004387, http://purl.flvc.org/fau/fd/FA00004387
Subject Headings
End of life care, Haitian Americans -- Medical care -- Florida, Informed consent (Medical law), Life and death, Power over, Medical care -- Cross cultural studies, Medical ethics, Nurse and patient, Nurses -- Attitudes, Patient advocacy, Patient refusal of care
Format
Document (PDF)
big cold: Health beliefs of elderly Haitians related to influenza immunizations
Title
The big cold: Health beliefs of elderly Haitians related to influenza immunizations.
Creator
Adonis-Rizzo, Marie Tamara., Florida Atlantic University, Jett, Kathleen F.
Abstract/Description
Influenza is responsible for 20,000 deaths per year in the United States, with adults 65 and older accounting for most of these deaths. In this qualitative study, ten Haitian elders were interviewed in Creole and data were hand-written and simultaneously translated in English, to better understand their health beliefs regarding influenza immunizations. Purnell's model (1998) of Cultural Competence was utilized as organizing framework for description of the sample, analysis and discussion....
Show moreInfluenza is responsible for 20,000 deaths per year in the United States, with adults 65 and older accounting for most of these deaths. In this qualitative study, ten Haitian elders were interviewed in Creole and data were hand-written and simultaneously translated in English, to better understand their health beliefs regarding influenza immunizations. Purnell's model (1998) of Cultural Competence was utilized as organizing framework for description of the sample, analysis and discussion. Several themes emerged during thematic analysis of the participants' responses. Participants identified influenza as a "big cold" which can initially be prevented with traditional home remedies and practices as well as with prayers. Lack of knowledge of the vaccine, uncertainty of the effectiveness of the vaccine, reliance on the recommendations of their children, doctors, and as well as the researcher, and lack of access were all factors reported as affecting their acceptance of the vaccine.
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Date Issued
2004
PURL
http://purl.flvc.org/fcla/dt/13186
Subject Headings
Immunization of older people--Florida, Health promotion--United States, Transcultural medical care--United States, Health attitudes, Patient compliance, Haitian Americans--Medical care--Florida
Format
Document (PDF)