Current Search: Caregivers (x)
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- Title
- What matters most to carers of people with mild dementia as evidence for transforming care.
- Creator
- Hain, Debra J., Engstrom, Gabriella, Touhy, Theris A.
- PURL
- http://purl.flvc.org/fcla/dt/3183653
- Subject Headings
- Caregiver Burden, Caregivers --Psychosocial Factors, Dementia --Psychosocial Factors, Caregivers, Dementia
- Format
- Document (PDF)
- Title
- EXPLORING THE SOCIAL PROCESS OF CAREGIVING IN FATHERS: A GROUNDED THEORY STUDY.
- Creator
- Rivera, Ashley, Smith, Marlaine, Florida Atlantic University, Christine E. Lynn College of Nursing
- Abstract/Description
-
The global agenda for gender equality recognizes unpaid domestic caregiving in the home as the largest barrier to gender equality. The purpose of this constructivist grounded theory study was to explore the social process of caregiving in fathers and identify the patterns that influence caregiving in fathers. Recruited from multiple community settings, thirty-five fathers participated in intensive interviews with the investigator. Guided by the Swanson’s (2013) Theory of Caring and using...
Show moreThe global agenda for gender equality recognizes unpaid domestic caregiving in the home as the largest barrier to gender equality. The purpose of this constructivist grounded theory study was to explore the social process of caregiving in fathers and identify the patterns that influence caregiving in fathers. Recruited from multiple community settings, thirty-five fathers participated in intensive interviews with the investigator. Guided by the Swanson’s (2013) Theory of Caring and using iterative categorization during data analysis, this study proposed the action-based Caregiving in Fathers Theory. The three main themes of the theory are Reinventing the Kitchen Table, Creating a Home and Being More than The Commander. Fathers identified the barriers of exhaustion, preoccupation, social culture, and controlling forces. Fathers identified the passages of love, expectations, support, and lifestyle. For fathers, gender equality in society begins with accepting fathers as proficient, competent, and primary caregivers. The results of this study can be utilized by healthcare professionals, educators, and other disciplines to understand the social process of caregiving in fathers. Future research could explore the role of sex or related phenomenon, such as disability, on caregiving.
Show less - Date Issued
- 2019
- PURL
- http://purl.flvc.org/fau/fd/FA00013408
- Subject Headings
- Caregivers, Male caregivers, Fathers, Social processes
- Format
- Document (PDF)
- Title
- Couples communication in dementia.
- Creator
- Williams, Christine L.
- PURL
- http://purl.flvc.org/fcla/dt/3183257
- Subject Headings
- Adaptation, Psychological, Caregivers, Caregivers/education, Communication, Dementia
- Format
- Document (PDF)
- Title
- Applying Story-Guided Dialogue to Examine Social Connections for Rural Caregivers of Persons Living with Alzheimer’s Disease and Related Dementias During A Global Pandemic.
- Creator
- Cappo, Kathleen, Wiese, Lisa Kirk, Florida Atlantic University, Christine E. Lynn College of Nursing, Christine E. Lynn College of Nursing
- Abstract/Description
-
In the U.S., an estimated 16 million persons provide unpaid care for family and friends with Alzheimer’s disease and related dementias (ADRD). These caregivers are experiencing challenges, such as lack social interaction, which further impacts their own health. Social isolation for caregivers is now considered to be another challenge due to living in a global pandemic. The purpose of this study was to address the gap in understanding rural informal caregiver by examining social connectedness...
Show moreIn the U.S., an estimated 16 million persons provide unpaid care for family and friends with Alzheimer’s disease and related dementias (ADRD). These caregivers are experiencing challenges, such as lack social interaction, which further impacts their own health. Social isolation for caregivers is now considered to be another challenge due to living in a global pandemic. The purpose of this study was to address the gap in understanding rural informal caregiver by examining social connectedness through the use of story-guided dialogues among rural caregivers of PWD during a global pandemic. Story Theory guides intentional dialogue, to bring forward connecting with self-in-relation through use of story path, noting low, high, and turning points.
Show less - Date Issued
- 2022
- PURL
- http://purl.flvc.org/fau/fd/FA00013983
- Subject Headings
- Caregivers, Rural caregivers, Alzheimer's disease, Social isolation, Pandemics
- Format
- Document (PDF)
- Title
- THE UNITARY CARING LIVED EXPERIENCE OF UNCERTAINTY AMONG FAMILY CAREGIVERS OF PERSONS WITH A STROKE DURING THE HOSPITAL STAY IN SAUDI ARABIA.
- Creator
- Alselami, Seham Eid, Butcher, Howard K., Florida Atlantic University, Christine E. Lynn College of Nursing, Christine E. Lynn College of Nursing
- Abstract/Description
-
Stroke is a major health problem in Saudi Arabia that impacts the health outcomes of adults and elderly persons. No matter its severity, stroke is a stressful life event not only for the survivors but their family caregivers as well. Uncertainty is one of the major problems facing family caregivers caring for persons with a stroke. Uncertainty affects overall health outcomes and the quality of life of family caregivers caring for persons with strokes. Current research has not yet identified...
Show moreStroke is a major health problem in Saudi Arabia that impacts the health outcomes of adults and elderly persons. No matter its severity, stroke is a stressful life event not only for the survivors but their family caregivers as well. Uncertainty is one of the major problems facing family caregivers caring for persons with a stroke. Uncertainty affects overall health outcomes and the quality of life of family caregivers caring for persons with strokes. Current research has not yet identified the meaning of the uncertainty of family caregivers of persons with strokes during hospitalization in Saudi Arabia. The purpose of this study was to gain an in-depth understanding of the meaning of uncertainty experienced by family caregivers of persons in the hospital who have survived strokes. This study used a phenomenological design. Data were collected through in-depth face-to-face and online semi-structured interviews with 15 family caregivers using openended questions. Participants were recruited from inpatient medical units and stroke care units in multi acute care hospitals in Saudi Arabia. The interviews were recorded, transcribed verbatim, translated, and analyzed using the hermeneutic phenomenological unitary caring research method. NVivo software (Version 12) was used to manage the qualitative data.
Show less - Date Issued
- 2022
- PURL
- http://purl.flvc.org/fau/fd/FA00014047
- Subject Headings
- Stroke, Caregivers, Nursing, Saudi Arabia
- Format
- Document (PDF)
- Title
- FAMILY CAREGIVING DURING TRANSITIONAL CARE: AN ETHNOGRAPHIC EXPLORATION OF THAI-ISAN FAMILY CAREGIVERS PROVIDING CARE FOR SURVIVING STROKE OLDER ADULTS.
- Creator
- Thiengtham, Supavadee, Chiang-Hanisko, Lenny, Florida Atlantic University, Christine E. Lynn College of Nursing, Christine E. Lynn College of Nursing
- Abstract/Description
-
Providing family caregiving during transitional care of a stroke patient is the most challenging for family caregivers. This is because of the shift in the care environment from a hospital with an organizational culture to a home with a traditional culture. Yet, cultural influences on family caregiving during transitional care are not well studied. This ethnographic study aims to describe the family caregiving of older Thai-Isan stroke survivors through the transition from hospital to home....
Show moreProviding family caregiving during transitional care of a stroke patient is the most challenging for family caregivers. This is because of the shift in the care environment from a hospital with an organizational culture to a home with a traditional culture. Yet, cultural influences on family caregiving during transitional care are not well studied. This ethnographic study aims to describe the family caregiving of older Thai-Isan stroke survivors through the transition from hospital to home. This study employs Lininger's culture care theory (CCT) as the theoretical framework and utilizes the ethnonursing method to discover cultural knowledge. Data was collected through a demographic questionnaire, participant observations, and a semi-structured interview. Data was analyzed using the Four Phases of the Data Analysis Enabler. Fifteen dyads of older stroke patients and their family caregivers were recruited following the inclusion and exclusion criteria. The research settings included Srinagarind Hospital units and key informants’ homes in a Thai-Isan community.
Show less - Date Issued
- 2022
- PURL
- http://purl.flvc.org/fau/fd/FA00014114
- Subject Headings
- Caregivers, Thai ʻĪsān, Stroke, Transcultural nursing
- Format
- Document (PDF)
- Title
- THE LIVED EXPERIENCE OF FAMILY CAREGIVERS OF PERSONS WITH SERIOUS MENTAL ILLNESS IN SAUDI ARABIA.
- Creator
- Alqhtani, Samirh Said, King, Beth, Florida Atlantic University, Christine E. Lynn College of Nursing, Christine E. Lynn College of Nursing
- Abstract/Description
-
Global research on family caregivers’ experiences with individuals who have serious mental illnesses has increased in different cultures. However, less research has been conducted on caregivers’ experiences within cultural contexts by using transcultural theory. Further, limited studies explored family caregivers’ lived experiences of people with serious mental illnesses in Saudi Arabia. The purpose of this hermeneutic phenomenological study was to explore the lived experiences of family...
Show moreGlobal research on family caregivers’ experiences with individuals who have serious mental illnesses has increased in different cultures. However, less research has been conducted on caregivers’ experiences within cultural contexts by using transcultural theory. Further, limited studies explored family caregivers’ lived experiences of people with serious mental illnesses in Saudi Arabia. The purpose of this hermeneutic phenomenological study was to explore the lived experiences of family caregivers of persons with serious mental illnesses in Saudi Arabia in a home environment. Guided by Ray’s (2016) Transcultural Caring Dynamics in Nursing and Health-Care Model and Diekelmann’s seven-stage analysis, this study interpreted the meaning of the family caregivers’ lived experiences for individuals with serious mental illness within Saudi Arabia. Data were collected through in-depth interviews and demographic data with participants. Participants included 10 males and 5 females, who ranged in age from 24 to 53 years. Fourteen of the participants were siblings. The meaning of families’ lived experiences was interpreted as a multidimensional process within Saudi culture in the constitutive pattern of the dynamic of an endless cycle of care. Three relational themes and 11 sub-themes were categorized to capture the multidimensional nature of the phenomenon: (a) development of caring experiences (formation of knowledge and Allah/spirituality); (b) living culture values and beliefs (societal views, caregivers’ beliefs and attitudes, caregiver in family, impact of social media, caregiver as financially supportive, and mental health care services); and (c) meaning of care ( being available, expressing love, and being present). This study's findings offer implications for nursing education, nursing practice, health policy, and future research recommendations.
Show less - Date Issued
- 2022
- PURL
- http://purl.flvc.org/fau/fd/FA00014051
- Subject Headings
- Caregivers, Mental illness, Saudi Arabia, Nursing
- Format
- Document (PDF)
- Title
- How do adult daughters care for self?.
- Creator
- Dunn, Dorothy J.
- PURL
- http://purl.flvc.org/fcla/dt/3336145
- Subject Headings
- Caregivers, Caregivers -- Psychosocial Factors, Daughters, Intergenerational Relations, Mother-Child Relations, Mothers, Self Care
- Format
- Document (PDF)
- Title
- Family resiliency, sense of coherence, social support and psychosocial interventions: reducing caregiver burden and determining the quality of life in persons with alzheimer’s disease.
- Creator
- Shroff, Havovi B., Frain, Michael, Florida Atlantic University, College of Education, Department of Counselor Education
- Abstract/Description
-
Alzheimer's disease (AD) is a progressive, degenerative disorder that attacks the brain's nerve cells, or neurons, resulting in loss of memory, thinking and language skills, and results in behavioral changes and lack of communication. Family members and caregivers of persons with Alzheimer’s disease can assume added responsibilities and stress due to the progressive and degenerative component of this disability and places an added strain on the family system. This study was designed to...
Show moreAlzheimer's disease (AD) is a progressive, degenerative disorder that attacks the brain's nerve cells, or neurons, resulting in loss of memory, thinking and language skills, and results in behavioral changes and lack of communication. Family members and caregivers of persons with Alzheimer’s disease can assume added responsibilities and stress due to the progressive and degenerative component of this disability and places an added strain on the family system. This study was designed to examine predictors of quality of life of persons living with AD and to examine caregiver burden and predictors of quality of life of persons living with AD. This study hopes to empower the caregivers and test the resiliency model of family stress, sense of coherence and social support while incorporating individual patient and family needs by surveying caregivers involved with working with patients with AD. Specific aims of the study include validating relationships of the resiliency model while determining the importance of family resiliency, the sense of coherence, social support and the role of psychosocial interventions specifically Validation Communication Intervention (VCI), to reduce caregiver burden and to predict the quality of life in persons with Alzheimer’s disease.
Show less - Date Issued
- 2014
- PURL
- http://purl.flvc.org/fau/fd/FA00004228, http://purl.flvc.org/fau/fd/FA00004228
- Subject Headings
- Alzheimer's disease -- Patients -- Family relationships, Alzheimer's disease -- Patients -- Home care, Caregivers -- Conduct of life, Caregivers -- Family relationships, Caregivers -- Psychology, Quality of life, Stress management
- Format
- Document (PDF)
- Title
- Muddling through: how young caregivers manage changing complexities.
- Creator
- Kain, Carole A., Christine E. Lynn College of Nursing
- Abstract/Description
-
In the United States, an estimated 1.4 million children and adolescents, age 18 and under, provide daily unpaid physical, emotional and supportive care to a chronically ill or disabled family member (NAC & UHF). While the phenomenon of caregiving performed by adult children and spouses has been extensively explored by nursing, little is known about how Young Adolescent Caregivers manage being a caregiver while they attend school and mature socially as an adolescent. The purpose of this...
Show moreIn the United States, an estimated 1.4 million children and adolescents, age 18 and under, provide daily unpaid physical, emotional and supportive care to a chronically ill or disabled family member (NAC & UHF). While the phenomenon of caregiving performed by adult children and spouses has been extensively explored by nursing, little is known about how Young Adolescent Caregivers manage being a caregiver while they attend school and mature socially as an adolescent. The purpose of this Grounded Theory study was to identify and describe the basic social psychological problem shared by young adolescent caregivers girls, (N=9), aged 11-14, and the basic social processes used to manage the shared problem. Using the constant comparative method of data analysis, from audio taped and transcribed, semi-structured interviews were reviewed. The Basic Social Psychological Process (BSPP) identified was Managing Complexities. Muddling Through (BSP) was the process identified through constant comparison of the data to create categories. The phases of Muddling Through are: Becoming a Caregiver, Choosing Family, Creating Structure and Maintaining Balance. Young adolescents experienced becoming a caregiver through three paths: Embracing the Challenge, Sharing the Load and Being Assigned. Awareness of the consequences of being a Young Adolescent Caregiver and strategies used by Young Adolescent Caregivers to manage their changing complexities has implications for nursing interventions. Nurses in a variety of settings that treat persons with chronic illnesses can modify their practice to make significant supportive interventions with these largely invisible caregivers. Implications for policy change, nursing education and practice and future research are explored.
Show less - Date Issued
- 2009
- PURL
- http://purl.flvc.org/FAU/227982
- Subject Headings
- Developmental psychology, Child caregivers, Children of parents with disabilities
- Format
- Document (PDF)
- Title
- Lonely journey: Lived experiences of daughters and daughters-in-law caring for aging parents.
- Creator
- Feder, Deidra Tatum., Florida Atlantic University, Turkel, Marian C.
- Abstract/Description
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The purpose of this phenomenological research was to explore the lived experiences of daughters and daughters-in-law who care for aging parents at home. Interviews were conducted with four daughters and two daughters-in-law. The interviews were audiotaped and the researcher conducted observational field notes. The interviews were utilized for data-collection and then transcribed into text. The researcher followed van Manen's method. Essential themes were frustration, anger, guilt, lack of...
Show moreThe purpose of this phenomenological research was to explore the lived experiences of daughters and daughters-in-law who care for aging parents at home. Interviews were conducted with four daughters and two daughters-in-law. The interviews were audiotaped and the researcher conducted observational field notes. The interviews were utilized for data-collection and then transcribed into text. The researcher followed van Manen's method. Essential themes were frustration, anger, guilt, lack of social life, effects on jobs and family support as described by the participants. Variant themes unfolded as themes not shared by all the participants: care for the caregiver, education for the caregiver, being a detective, coming out of his shell, like a robot, reference of aging parent as a patient and judgment by others. The researcher uncovered interpretive themes of unconditional devotion, struggling with childlike mannerism, everlasting vigilance and ambivalence through a paradoxical view. Lonely journey surfaced as the metatheme.
Show less - Date Issued
- 2001
- PURL
- http://purl.flvc.org/fcla/dt/12791
- Subject Headings
- Aging parents--Care, Mothers and daughters, Caregivers, Loneliness
- Format
- Document (PDF)
- Title
- The experience of nurses caring for the primary caregivers of persons living with AIDS.
- Creator
- Stobie, Marjorie Michele., Florida Atlantic University, Appleton, Cathy
- Abstract/Description
-
The rising incidence of Acquired Immune Disease Syndrome (AIDS), the increased length of survival for persons living with AIDS (PLWAs), and the associated high costs, suggest that patients will want and need to be cared for at home by family caregivers. If caring is the essence of nursing (Leininger, 1988a; Watson, 1985), then research on caring will expand nurses' understanding of what caring means to the recipient: the patients and their primary caregivers. The purpose of this...
Show moreThe rising incidence of Acquired Immune Disease Syndrome (AIDS), the increased length of survival for persons living with AIDS (PLWAs), and the associated high costs, suggest that patients will want and need to be cared for at home by family caregivers. If caring is the essence of nursing (Leininger, 1988a; Watson, 1985), then research on caring will expand nurses' understanding of what caring means to the recipient: the patients and their primary caregivers. The purpose of this phenomenological study of primary caregivers of PLWAs was to discover the meaning of their being cared for by the nurse. Colaizzi's (1978) method of data analysis was used. The experience of being cared for by the nurse for caregivers of PLWAs was knowing that they were in a relationship, in this together with a nurse who was there for them; experiencing the nurse's way of being as a competent friend; and being helped to cope with the experience of being a caregiver through specific nursing actions. Implications for practice, education and research are discussed.
Show less - Date Issued
- 1994
- PURL
- http://purl.flvc.org/fcla/dt/15045
- Subject Headings
- AIDS (Disease)--Nursing, Caregivers, Chronically ill--Home care
- Format
- Document (PDF)
- Title
- The Association Between Informal Caregiver Knowledge about Type 2 Diabetes Mellitus and Patients’ HbA1C Level among a Saudi Arabian Cohort.
- Creator
- Fallatah, Jamilah Ahmed, Wiese, Lisa Kirk, Florida Atlantic University, Christine E. Lynn College of Nursing, Christine E. Lynn College of Nursing
- Abstract/Description
-
Background: Almost seven million persons in Saudi Arabia are diagnosed with Type 2 Diabetes Mellitus (T2DM). Lack of knowledge regarding T2DM among Saudi caregivers may impact T2DM management and disease outcomes, yet established educational programs for their caregivers are scant. There is a need to discover T2DM informal caregivers’ knowledge and its relation to patients' T2DM management, prior to designing educational interventions. Purpose: The purpose of this quantitative, correlational...
Show moreBackground: Almost seven million persons in Saudi Arabia are diagnosed with Type 2 Diabetes Mellitus (T2DM). Lack of knowledge regarding T2DM among Saudi caregivers may impact T2DM management and disease outcomes, yet established educational programs for their caregivers are scant. There is a need to discover T2DM informal caregivers’ knowledge and its relation to patients' T2DM management, prior to designing educational interventions. Purpose: The purpose of this quantitative, correlational study was to measure disease knowledge among informal caregivers for patients with T2DM in Saudi Arabia, and to compare findings to the patient-health status presented by HbA1C level. This study was conceptualized within nursing caring science, using Nursing as Caring Theory (Boykin & Schoenhofer, 2001), and the Individual and Family Self-Management Theory (Ryan & Sawin, 2009).
Show less - Date Issued
- 2023
- PURL
- http://purl.flvc.org/fau/fd/FA00014307
- Subject Headings
- Diabetes Mellitus, Type 2, Caregivers, Saudi Arabia, Nursing
- Format
- Document (PDF)
- Title
- The lived experience of the spouses of transplant recipients.
- Creator
- Stecher, Jo Anne., Christine E. Lynn College of Nursing
- Abstract/Description
-
The numbers of transplant surgeries continue to rise in the U.S. This results in a greater number of caregivers who are present in the recipients' lives. Most often these caregivers are spouses. Transplant spouses present with emotional needs, which have been expressed in this study. Nurses, especially those who work with the spouses of transplant candidates and recipients, could be appreciative of the requirements that have been told by these spouses. Six women and two men were interviewed...
Show moreThe numbers of transplant surgeries continue to rise in the U.S. This results in a greater number of caregivers who are present in the recipients' lives. Most often these caregivers are spouses. Transplant spouses present with emotional needs, which have been expressed in this study. Nurses, especially those who work with the spouses of transplant candidates and recipients, could be appreciative of the requirements that have been told by these spouses. Six women and two men were interviewed for this study. Their stories were analyzed using a phenomenological approach and five themes emerged from the data. The themes that surfaced included uncertainty, support, thankfulness and a positive approach, intimacy and the relationship as a couple, and guilt. Two general structures then evolved from these themes to include adaptation and belief in self and others. The general structures revealed the ways the spouses learned to live during the transplant journey.
Show less - Date Issued
- 2009
- PURL
- http://purl.flvc.org/FAU/367765
- Subject Headings
- Transplantation of organs, tissues, etc, Family relationships, Caregivers, Conduct of life, Stress management
- Format
- Document (PDF)
- Title
- The experience of caring for an elderly parent with Alzheimer's disease.
- Creator
- Davies, Sally., Florida Atlantic University, Beckerman, Anita
- Abstract/Description
-
The purpose of this study was to describe the experience of caring for an elderly parent in the last year of her life. Using the historical research design, the author examined a journal kept during the time of the experience. The analysis revealed the recurrent themes of mother/daughter and patient/nurse relationships in the journal. These themes were then analysed to reflect the frequency and the alternating rhythms of interactions throughout the time the journal encompasses. The writing of...
Show moreThe purpose of this study was to describe the experience of caring for an elderly parent in the last year of her life. Using the historical research design, the author examined a journal kept during the time of the experience. The analysis revealed the recurrent themes of mother/daughter and patient/nurse relationships in the journal. These themes were then analysed to reflect the frequency and the alternating rhythms of interactions throughout the time the journal encompasses. The writing of this personal story of caregiving and its analysis documents a personal event that can be used by others to understand the caregiving experience.
Show less - Date Issued
- 1996
- PURL
- http://purl.flvc.org/fcla/dt/15342
- Subject Headings
- Aging parents--Care--Psychological aspects, Alzheimer's disease--Patients--Family relationships, Caregivers--Psychology, Daughters--Psychology, Parent and adult child, Diaries--Therapeutic use, Nurses--Psychology
- Format
- Document (PDF)
- Title
- Care at Work: A Feminist Analysis of the Long-Term Care Industry in the United States.
- Creator
- Tunick, Rachel, Beoku-Betts, Josephine, Lange, Bernadette, Florida Atlantic University, Dorothy F. Schmidt College of Arts and Letters, Center for Women, Gender and Sexuality Studies
- Abstract/Description
-
This research provides a feminist perspective on the lowest paid sector of the United States long-term care industry, Certified Nursing Assistants. This research adds to current feminist scholarship on the modern professional caregiving industry by focusing on the perspective of the workers. As the population of older adults requiring care is expected to increase over the coming decades, the demand for paid caregivers will increase as well. Historically, care work was an expected duty done...
Show moreThis research provides a feminist perspective on the lowest paid sector of the United States long-term care industry, Certified Nursing Assistants. This research adds to current feminist scholarship on the modern professional caregiving industry by focusing on the perspective of the workers. As the population of older adults requiring care is expected to increase over the coming decades, the demand for paid caregivers will increase as well. Historically, care work was an expected duty done freely by the women of the family, but today much of the vital intimate caring labor is relegated to paid caregivers. I examine how alternative social, political and economic frameworks can transform United States society’s attitude towards the increasingly relevant issue of caring labor. I argue that incorporating a feminist perspective will be helpful in developing a sustainable model for caring labor that acknowledges the dignity of both patients and their caregivers.
Show less - Date Issued
- 2016
- PURL
- http://purl.flvc.org/fau/fd/FA00004801, http://purl.flvc.org/fau/fd/FA00004801
- Subject Headings
- Nurses' aides., Medical personnel-caregiver relationships., Nursing homes--Employees--Attitudes., Feminist theory., Caring--Moral and ethical aspects., Feminism--Political aspects., Long-term care facilities--Administration., Nursing home patients--Care., Older people--Nursing home care.
- Format
- Document (PDF)