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Title: Applying Story-Guided Dialogue to Examine Social Connections for Rural Caregivers of Persons Living with Alzheimer’s Disease and Related Dementias During A Global Pandemic.
Creator: Cappo, Kathleen, Wiese, Lisa Kirk, Florida Atlantic University, Christine E. Lynn College of Nursing, Christine E. Lynn College of Nursing
Abstract/Description: In the U.S., an estimated 16 million persons provide unpaid care for family and friends with Alzheimer’s disease and related dementias (ADRD). These caregivers are experiencing challenges, such as lack social interaction, which further impacts their own health. Social isolation for caregivers is now considered to be another challenge due to living in a global pandemic. The purpose of this study was to address the gap in understanding rural informal caregiver by examining social connectedness...
Show moreIn the U.S., an estimated 16 million persons provide unpaid care for family and friends with Alzheimer’s disease and related dementias (ADRD). These caregivers are experiencing challenges, such as lack social interaction, which further impacts their own health. Social isolation for caregivers is now considered to be another challenge due to living in a global pandemic. The purpose of this study was to address the gap in understanding rural informal caregiver by examining social connectedness through the use of story-guided dialogues among rural caregivers of PWD during a global pandemic. Story Theory guides intentional dialogue, to bring forward connecting with self-in-relation through use of story path, noting low, high, and turning points.
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Date Issued: 2022
PURL: http://purl.flvc.org/fau/fd/FA00013983
Subject Headings: Caregivers, Rural caregivers, Alzheimer's disease, Social isolation, Pandemics
Format: Document (PDF)

Title: EXPLORING THE SOCIAL PROCESS OF CAREGIVING IN FATHERS: A GROUNDED THEORY STUDY.
Creator: Rivera, Ashley, Smith, Marlaine, Florida Atlantic University, Christine E. Lynn College of Nursing
Abstract/Description: The global agenda for gender equality recognizes unpaid domestic caregiving in the home as the largest barrier to gender equality. The purpose of this constructivist grounded theory study was to explore the social process of caregiving in fathers and identify the patterns that influence caregiving in fathers. Recruited from multiple community settings, thirty-five fathers participated in intensive interviews with the investigator. Guided by the Swanson’s (2013) Theory of Caring and using...
Show moreThe global agenda for gender equality recognizes unpaid domestic caregiving in the home as the largest barrier to gender equality. The purpose of this constructivist grounded theory study was to explore the social process of caregiving in fathers and identify the patterns that influence caregiving in fathers. Recruited from multiple community settings, thirty-five fathers participated in intensive interviews with the investigator. Guided by the Swanson’s (2013) Theory of Caring and using iterative categorization during data analysis, this study proposed the action-based Caregiving in Fathers Theory. The three main themes of the theory are Reinventing the Kitchen Table, Creating a Home and Being More than The Commander. Fathers identified the barriers of exhaustion, preoccupation, social culture, and controlling forces. Fathers identified the passages of love, expectations, support, and lifestyle. For fathers, gender equality in society begins with accepting fathers as proficient, competent, and primary caregivers. The results of this study can be utilized by healthcare professionals, educators, and other disciplines to understand the social process of caregiving in fathers. Future research could explore the role of sex or related phenomenon, such as disability, on caregiving.
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Date Issued: 2019
PURL: http://purl.flvc.org/fau/fd/FA00013408
Subject Headings: Caregivers, Male caregivers, Fathers, Social processes
Format: Document (PDF)

Title: FAMILY CAREGIVING DURING TRANSITIONAL CARE: AN ETHNOGRAPHIC EXPLORATION OF THAI-ISAN FAMILY CAREGIVERS PROVIDING CARE FOR SURVIVING STROKE OLDER ADULTS.
Creator: Thiengtham, Supavadee, Chiang-Hanisko, Lenny, Florida Atlantic University, Christine E. Lynn College of Nursing, Christine E. Lynn College of Nursing
Abstract/Description: Providing family caregiving during transitional care of a stroke patient is the most challenging for family caregivers. This is because of the shift in the care environment from a hospital with an organizational culture to a home with a traditional culture. Yet, cultural influences on family caregiving during transitional care are not well studied. This ethnographic study aims to describe the family caregiving of older Thai-Isan stroke survivors through the transition from hospital to home....
Show moreProviding family caregiving during transitional care of a stroke patient is the most challenging for family caregivers. This is because of the shift in the care environment from a hospital with an organizational culture to a home with a traditional culture. Yet, cultural influences on family caregiving during transitional care are not well studied. This ethnographic study aims to describe the family caregiving of older Thai-Isan stroke survivors through the transition from hospital to home. This study employs Lininger's culture care theory (CCT) as the theoretical framework and utilizes the ethnonursing method to discover cultural knowledge. Data was collected through a demographic questionnaire, participant observations, and a semi-structured interview. Data was analyzed using the Four Phases of the Data Analysis Enabler. Fifteen dyads of older stroke patients and their family caregivers were recruited following the inclusion and exclusion criteria. The research settings included Srinagarind Hospital units and key informants’ homes in a Thai-Isan community.
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Date Issued: 2022
PURL: http://purl.flvc.org/fau/fd/FA00014114
Subject Headings: Caregivers, Thai ʻĪsān, Stroke, Transcultural nursing
Format: Document (PDF)

Title: The lived experience of the spouses of transplant recipients.
Creator: Stecher, Jo Anne., Christine E. Lynn College of Nursing
Abstract/Description: The numbers of transplant surgeries continue to rise in the U.S. This results in a greater number of caregivers who are present in the recipients' lives. Most often these caregivers are spouses. Transplant spouses present with emotional needs, which have been expressed in this study. Nurses, especially those who work with the spouses of transplant candidates and recipients, could be appreciative of the requirements that have been told by these spouses. Six women and two men were interviewed...
Show moreThe numbers of transplant surgeries continue to rise in the U.S. This results in a greater number of caregivers who are present in the recipients' lives. Most often these caregivers are spouses. Transplant spouses present with emotional needs, which have been expressed in this study. Nurses, especially those who work with the spouses of transplant candidates and recipients, could be appreciative of the requirements that have been told by these spouses. Six women and two men were interviewed for this study. Their stories were analyzed using a phenomenological approach and five themes emerged from the data. The themes that surfaced included uncertainty, support, thankfulness and a positive approach, intimacy and the relationship as a couple, and guilt. Two general structures then evolved from these themes to include adaptation and belief in self and others. The general structures revealed the ways the spouses learned to live during the transplant journey.
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Date Issued: 2009
PURL: http://purl.flvc.org/FAU/367765
Subject Headings: Transplantation of organs, tissues, etc, Family relationships, Caregivers, Conduct of life, Stress management
Format: Document (PDF)

Title: The Association Between Informal Caregiver Knowledge about Type 2 Diabetes Mellitus and Patients’ HbA1C Level among a Saudi Arabian Cohort.
Creator: Fallatah, Jamilah Ahmed, Wiese, Lisa Kirk, Florida Atlantic University, Christine E. Lynn College of Nursing, Christine E. Lynn College of Nursing
Abstract/Description: Background: Almost seven million persons in Saudi Arabia are diagnosed with Type 2 Diabetes Mellitus (T2DM). Lack of knowledge regarding T2DM among Saudi caregivers may impact T2DM management and disease outcomes, yet established educational programs for their caregivers are scant. There is a need to discover T2DM informal caregivers’ knowledge and its relation to patients' T2DM management, prior to designing educational interventions. Purpose: The purpose of this quantitative, correlational...
Show moreBackground: Almost seven million persons in Saudi Arabia are diagnosed with Type 2 Diabetes Mellitus (T2DM). Lack of knowledge regarding T2DM among Saudi caregivers may impact T2DM management and disease outcomes, yet established educational programs for their caregivers are scant. There is a need to discover T2DM informal caregivers’ knowledge and its relation to patients' T2DM management, prior to designing educational interventions. Purpose: The purpose of this quantitative, correlational study was to measure disease knowledge among informal caregivers for patients with T2DM in Saudi Arabia, and to compare findings to the patient-health status presented by HbA1C level. This study was conceptualized within nursing caring science, using Nursing as Caring Theory (Boykin & Schoenhofer, 2001), and the Individual and Family Self-Management Theory (Ryan & Sawin, 2009).
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Date Issued: 2023
PURL: http://purl.flvc.org/fau/fd/FA00014307
Subject Headings: Diabetes Mellitus, Type 2, Caregivers, Saudi Arabia, Nursing
Format: Document (PDF)

Title: THE LIVED EXPERIENCE OF FAMILY CAREGIVERS OF PERSONS WITH SERIOUS MENTAL ILLNESS IN SAUDI ARABIA.
Creator: Alqhtani, Samirh Said, King, Beth, Florida Atlantic University, Christine E. Lynn College of Nursing, Christine E. Lynn College of Nursing
Abstract/Description: Global research on family caregivers’ experiences with individuals who have serious mental illnesses has increased in different cultures. However, less research has been conducted on caregivers’ experiences within cultural contexts by using transcultural theory. Further, limited studies explored family caregivers’ lived experiences of people with serious mental illnesses in Saudi Arabia. The purpose of this hermeneutic phenomenological study was to explore the lived experiences of family...
Show moreGlobal research on family caregivers’ experiences with individuals who have serious mental illnesses has increased in different cultures. However, less research has been conducted on caregivers’ experiences within cultural contexts by using transcultural theory. Further, limited studies explored family caregivers’ lived experiences of people with serious mental illnesses in Saudi Arabia. The purpose of this hermeneutic phenomenological study was to explore the lived experiences of family caregivers of persons with serious mental illnesses in Saudi Arabia in a home environment. Guided by Ray’s (2016) Transcultural Caring Dynamics in Nursing and Health-Care Model and Diekelmann’s seven-stage analysis, this study interpreted the meaning of the family caregivers’ lived experiences for individuals with serious mental illness within Saudi Arabia. Data were collected through in-depth interviews and demographic data with participants. Participants included 10 males and 5 females, who ranged in age from 24 to 53 years. Fourteen of the participants were siblings. The meaning of families’ lived experiences was interpreted as a multidimensional process within Saudi culture in the constitutive pattern of the dynamic of an endless cycle of care. Three relational themes and 11 sub-themes were categorized to capture the multidimensional nature of the phenomenon: (a) development of caring experiences (formation of knowledge and Allah/spirituality); (b) living culture values and beliefs (societal views, caregivers’ beliefs and attitudes, caregiver in family, impact of social media, caregiver as financially supportive, and mental health care services); and (c) meaning of care ( being available, expressing love, and being present). This study's findings offer implications for nursing education, nursing practice, health policy, and future research recommendations.
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Date Issued: 2022
PURL: http://purl.flvc.org/fau/fd/FA00014051
Subject Headings: Caregivers, Mental illness, Saudi Arabia, Nursing
Format: Document (PDF)

Title: THE UNITARY CARING LIVED EXPERIENCE OF UNCERTAINTY AMONG FAMILY CAREGIVERS OF PERSONS WITH A STROKE DURING THE HOSPITAL STAY IN SAUDI ARABIA.
Creator: Alselami, Seham Eid, Butcher, Howard K., Florida Atlantic University, Christine E. Lynn College of Nursing, Christine E. Lynn College of Nursing
Abstract/Description: Stroke is a major health problem in Saudi Arabia that impacts the health outcomes of adults and elderly persons. No matter its severity, stroke is a stressful life event not only for the survivors but their family caregivers as well. Uncertainty is one of the major problems facing family caregivers caring for persons with a stroke. Uncertainty affects overall health outcomes and the quality of life of family caregivers caring for persons with strokes. Current research has not yet identified...
Show moreStroke is a major health problem in Saudi Arabia that impacts the health outcomes of adults and elderly persons. No matter its severity, stroke is a stressful life event not only for the survivors but their family caregivers as well. Uncertainty is one of the major problems facing family caregivers caring for persons with a stroke. Uncertainty affects overall health outcomes and the quality of life of family caregivers caring for persons with strokes. Current research has not yet identified the meaning of the uncertainty of family caregivers of persons with strokes during hospitalization in Saudi Arabia. The purpose of this study was to gain an in-depth understanding of the meaning of uncertainty experienced by family caregivers of persons in the hospital who have survived strokes. This study used a phenomenological design. Data were collected through in-depth face-to-face and online semi-structured interviews with 15 family caregivers using openended questions. Participants were recruited from inpatient medical units and stroke care units in multi acute care hospitals in Saudi Arabia. The interviews were recorded, transcribed verbatim, translated, and analyzed using the hermeneutic phenomenological unitary caring research method. NVivo software (Version 12) was used to manage the qualitative data.
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Date Issued: 2022
PURL: http://purl.flvc.org/fau/fd/FA00014047
Subject Headings: Stroke, Caregivers, Nursing, Saudi Arabia
Format: Document (PDF)

Nursing (3)	+ -
Saudi Arabia (3)	+ -
Stroke (2)	+ -
Alzheimer's disease (1)	+ -
Conduct of life (1)	+ -

Diabetes Mellitus, Type 2 (1)	+ -
Family relationships (1)	+ -
Fathers (1)	+ -
Male caregivers (1)	+ -
Mental illness (1)	+ -
Pandemics (1)	+ -
Rural caregivers (1)	+ -
Social isolation (1)	+ -
Social processes (1)	+ -
Stress management (1)	+ -
Thai ʻĪsān (1)	+ -
Transcultural nursing (1)	+ -
Transplantation of organs, tissues, etc (1)	+ -

Florida Atlantic University (6)	+ -
Wiese, Lisa Kirk (2)	+ -
Alqhtani, Samirh Said (1)	+ -
Alselami, Seham Eid (1)	+ -
Butcher, Howard K. (1)	+ -

Cappo, Kathleen (1)	+ -
Chiang-Hanisko, Lenny (1)	+ -
Fallatah, Jamilah Ahmed (1)	+ -
King, Beth (1)	+ -
Rivera, Ashley (1)	+ -
Smith, Marlaine (1)	+ -
Stecher, Jo Anne. (1)	+ -
Thiengtham, Supavadee (1)	+ -

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