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hurricane notebooks
Title
The hurricane notebooks.
Creator
Hogan, Mary Ann., Dorothy F. Schmidt College of Arts and Letters, Department of English
Abstract/Description
The Hurricane Notebooks is a manuscript-length memoir of the narrator's quest to piece together the enigmatic character of her late father. She does this through her discovery of his private notebooks as well as her unearthing of four generations of family turmoil.
Date Issued
2013
PURL
http://purl.flvc.org/fcla/dt/3360803
Subject Headings
Parent and child, Parents and children, Family relationships, Fathers and daughters, Family relationships, Self-perception, Identity (Psychology)
Format
Document (PDF)
The meaning of the experience of parenting a child with attention-deficit hyperactivity disorder
Title
The meaning of the experience of parenting a child with attention-deficit hyperactivity disorder.
Creator
Parker, Robin Barbara., Florida Atlantic University, Appleton, Cathy
Abstract/Description
This phenomenological study reveals the meaning of the experience of parenting a child with attention-deficit hyperactivity disorder. The research participants were six parents who were contacted through a local community based support group or by professional referral. The methodology used for this study was a descriptive qualitative research process with a phenomenological design. Hermeneutic phenomenology as described by van Manen (1990) provided the method of inquiry and analysis for this...
Show moreThis phenomenological study reveals the meaning of the experience of parenting a child with attention-deficit hyperactivity disorder. The research participants were six parents who were contacted through a local community based support group or by professional referral. The methodology used for this study was a descriptive qualitative research process with a phenomenological design. Hermeneutic phenomenology as described by van Manen (1990) provided the method of inquiry and analysis for this study. Participants were asked to participate in open-ended, audiotaped interviews describing their subjective experience of parenting. Five essential themes emerged from the analysis of the participants' narrative descriptions.
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Date Issued
1994
PURL
http://purl.flvc.org/fcla/dt/15066
Subject Headings
Attention-deficit-disordered children, Hyperactive children--Family relationships, Parent and child, Child rearing
Format
Document (PDF)
Challenges faced by parents caring for their child after traumatic brain injury
Title
Challenges faced by parents caring for their child after traumatic brain injury.
Creator
Greif, Shelley J., Liehr, Patricia, Florida Atlantic University, Christine E. Lynn College of Nursing
Abstract/Description
When children have a moderate to severe traumatic brain injury (TBI), they are treated in a continuum of care that includes triage and emergency care, hospitalization, rehabilitation and outpatient therapy. Physical and cognitive recovery from brain injury may take several years. Children’s recovery varies, depending on numerous factors including pre-injury conditions and injury severity. While children and families are eager to return home to familiar activities, there are often significant...
Show moreWhen children have a moderate to severe traumatic brain injury (TBI), they are treated in a continuum of care that includes triage and emergency care, hospitalization, rehabilitation and outpatient therapy. Physical and cognitive recovery from brain injury may take several years. Children’s recovery varies, depending on numerous factors including pre-injury conditions and injury severity. While children and families are eager to return home to familiar activities, there are often significant physical, cognitive, behavioral and emotional changes that challenge families. Successful community reintegration depends on the ability of the family to understand and support the child, dealing with and responding effectively to those challenges. The purpose of this study is to understand how parents manage the care and community reintegration of their child who has experienced a TBI over time. This study utilized a mixed methods approach exploring the dimensions of the health challenge faced by parents caring for a child after a TBI, critical turning points as they face health challenges, and approaches for movement toward resolving health challenges. Story theory and story inquiry method were used to gather stories from 10 parents of children who experienced moderate to severe traumatic brain injury between the ages of 12 and 18, and between 2 and 5 years ago. Parents’ perceptions of their child’s quality of life and their ability to manage their child’s health challenge were explored using the Pediatric Quality of Life Inventory and Family Management Measure. Health challenges identified were: living with overwhelming personal upheaval, navigating the unknown, and struggling with how to support independence/dependence. Turning points were chronological or epiphanies. Approaches for movement toward resolving were continuously re-creating a new normal, being fully engaged in meeting the needs of one’s child, and embracing caring relationships to construct the new normal. Qualitative and quantitative data were analyzed to synthesize the findings. Results include a sense of ease in managing the health condition of the child associated with continuously creating a new normal. Healthcare providers can support and strengthen family management of children after TBI by understanding the health challenge, critical turning points and how parents move toward resolving.
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Date Issued
2014
PURL
http://purl.flvc.org/fau/fd/FA00004199
Subject Headings
Brain -- Wounds and injuries, Brain damage -- Patients -- Rehabilitation, Brain damage -- Psychological aspects, Brain damaged children -- Family relationships, Brain damaged children -- Rehabilitation, Parents of children with disabilities
Format
Document (PDF)